Newborn screening basically has the same purposes as prenatal screening with the added difficulty of having to bring to light and identify misdiagnosed cases.
Aside from providing timely treatment and therapies, newborn screening will finally enable educators, doctors and your average person to know how common this syndrome actually is.
The media will finally start talking about it.
The awareness battle will be won.
This will stimulate funding for research in order to improve the understanding of this complex syndrome, thus ensuring a better future for our children and our grandchildren.
What can you do to help us?
If you haven’t already done so, please consider making a donation.Make a Donation!
In addition, you can sign this petition and ask all your contacts to do the same.
Sign it will help to generate the interest that is necessary to achieve financial support from potential donors or sponsors.Sign the Petition!
Thank you, thank you, thank you!